Many people living with ALS lose the ability to speak, relying on eye-tracking technology to communicate. But access to this technology was in jeopardy if Congress didn’t pass the Steve Gleason Enduring Voices Act. To get their attention, we did something politicians do all the time…we robocalled them. We created a call center where ALS patients called politicians using the technology they risked losing. We then drove the public to KeepMyVoice.com, where they could use eye-tracking technology to contact Congress. Ultimately, they listened. On February 9, 2018, the Act was signed into law.
We had one goal throughout this process: get the Steve Gleason Enduring Voices Act signed into law. With 2017 being one of the most challenging years in political history, how could we break through to a busier than ever government? Team Gleason, an ALS advocacy organization, tasked us with creating a campaign that would help ensure those living with ALS always have a voice. To achieve this, we needed the ALS community and the public to urge politicians to Co-sponsor the bill.
We created a call center filled with ALS patients who robocalled politicians using the technology they risked losing. The robocallers included former American Football player and founder of Team Gleason, Steve Gleason. Additionally, we built an interactive website, KeepMyVoice.com, which allowed the public to use eye-tracking technology to contact Congress via social media, email, and phone calls. Our efforts helped raise awareness, motivating Congress to sign this bill into law.